WASHINGTON, D.C. – U.S. Senator Tammy Baldwin (D-WI), member of the Senate Comprehensive Care Caucus, joined her colleagues in introducing a pair of bipartisan bills to expand access to palliative and hospice care. The Expanding Access to Palliative Care Act and Improving Access to Transfusion Care for Hospice Patients Act would put critical care for Wisconsinites’ aging and sick loved ones within reach for more families. Palliative care focuses on relieving and preventing patients’ suffering and improving their quality of life.
“Having served as my grandmother’s primary caretaker as she got old, this issue is deeply personal for me and countless Wisconsinites who have had similar experience caring for a loved one,” said Senator Baldwin. “I know the challenges both patients and caregivers face, and we need to better support both of them. I am proud to work with Democrats and Republicans to expand and improve palliative care for American families because everyone deserves to know that if they need it, compassionate and affordable care is within reach.”
The Expanding Access to Palliative Care Act would better allow families to access that critical service as early as possible by establishing a demonstration project through Medicare to expand access to palliative care at the time of diagnosis of serious illness or injury. Currently, patients on Medicare can only access palliative care through hospice. This legislation would provide comprehensive palliative care services much earlier in the course of illness, improving quality of life for the patient and their family and often also improving outcomes.
The Improving Access to Transfusion Care for Hospice Patients Act would carve out payment for transfusion services within the Medicare hospice benefit, allowing for separate billing to Medicare for transfusions. Patients needing this care would be able to continue to receive it outside of the hospice bundle, while still receiving full hospice benefits. Currently, many patients needing transfusions to maintain quality of life (due to conditions such as leukemia, lymphoma, or myeloma) often wait much longer to opt into hospice because they can lose access to transfusion care when they do so, given that such care currently is paid for out of a capped hospice benefit amount. Hospices are allowed to cover transfusions, but it is very costly, so few patients can afford to do so on a regular basis when in hospice care.
Medical research shows that palliative and hospice care have been associated with enhanced quality of life for patients, reduced hospital expenditures and lengths of stay, and longer patient survival time.
“The reintroduction of the Expanding Access to Palliative Care Act is a meaningful step toward ensuring patients and families can receive high-quality care when and where they need it. Building on the success of the Medicare Care Choices Model, we believe a concurrent care approach within hospice should be developed for national dissemination,” said Dr. Steve Landers, CEO of the National Alliance for Care at Home. “We also appreciate Senator Rosen’s leadership on the Improving Access to Transfusion Care for Hospice Patients Act, which addresses a key access challenge. The Alliance is proud to support these efforts to expand person-centered, community-based care.”
“The American Academy of Hospice and Palliative Medicine (AAHPM) has long championed a Medicare payment model designed to close the gaps in care for individuals with serious illness, as well as their families and caregivers. This model aims to support palliative care teams of all sizes, structures, and regions in delivering high-quality, patient-centered care,” said Kristina Newport, MD FAAHPM, HMDC, AAHPM Chief Medical Officer. “We are proud to endorse the bipartisan Expanding Access to Palliative Care Act, which proposes testing a community-based palliative care model. We commend Senators Rosen, Barrasso, Baldwin, and Fischer—co-chairs of the Senate Comprehensive Care Caucus—for their leadership in introducing this vital legislation and their dedication to expanding access to palliative care. This effort will help align treatments with patients’ unique goals and preferences, enabling more care to be delivered in the settings where patients live.”
“We commend Sens. Rosen, Barrasso, and Baldwin for the introduction of the Improving Access to Transfusion Care for Hospice Patients Act,” said Belinda R. Avalos, MD, president of the American Society of Hematology. “This bill will support critical access to transfusions for patients with blood cancers in hospice and will make great strides in guaranteeing comprehensive palliative care.”
“The Association for the Advancement of Blood & Biotherapies applauds Senators Rosen, Barrasso, and Baldwin for reintroducing the Improving Access to Transfusion Care for Hospice Patients Act,” said Debra BenAvram, FASAE, CAE, AAB CEO. “The Association is committed to advancing patients’ access to safe blood transfusions throughout the continuum of care, and this bill addresses an important barrier for patients receiving care under the Medicare hospice benefit.”
“Blood transfusions are a proven palliative measure that can significantly enhance the quality of life for many patients,” said Kate Fry, CEO of America’s Blood Centers. “This legislation bridges a gap in care, ensuring patients can receive transfusions while also benefiting from the holistic support provided under the Medicare hospice benefit. It’s a compassionate step forward in patient-centered care that recognizes the complex needs of those navigating serious illnesses.”
Senator Baldwin has championed efforts to expand access to palliative care and grow our palliative care and hospice workforce. Senator Baldwin previously introduced the Palliative Care and Hospice Education and Training Act (PCHETA) to help build the palliative care workforce through enhanced training, improved education and increased funding for palliative care research.
The Expanding Access to Palliative Care Act is led by Senator Jacky Rosen (D-NV) and co-sponsored by Senators John Barrasso (R-WY) and Deb Fischer (R-NE).
The Improving Access to Transfusion Care for Hospice Patients Act is also led by Senator Jacky Rosen (D-NV) and co-sponsored by Senator Barrasso (R-WY).
An online version of this release is available here.